Upon reading that, I’ll admit that the cynical, sarcastic part of my brain said, “Well, NO SHIT, Sherlock!!” Then the slightly less cynical and more rational part of my brain said, “Not everyone has the same close up and personal experience with Alzheimer’s and/or Senile Dementia that you do – this might actually be news to some people, and those people might be able to do something about it, so stop being a snarky bitch.”
The article is here: Alzheimer’s costs to soar without effective drugs
The Alzheimer’s Association Report referenced is here: Changing the Trajectory of Alzheimer’s Disease: A National Imperative
Alrghtly then, I’ll attempt defer to my less bitchy side, but I cannot make any guarantees that by the time you finish reading this that you won’t be thinking, “Good grief, this woman needs some intensive therapy on many, many levels.”
The report by the Alzheimer’s Association estimates that “the number of Americans 65 and older with Alzheimer’s will increase from 5.1 million today to 13.5 million by mid-century.” ie, 2050, when I will be 78 years old. Well, again, No Shit Sherlock, we have a Baby Boomer generation who is approaching a little thing called old age, and yeah – a chunk of them will outlive every other thing that could have killed them first.
Personally, I have come to the conclusion that Alzheimer’s is what gets you when nothing else has been able to kill you first. (The exception being early-onset Alzheimer’s – 5% to 10% of all Alzheimer’s victims are just screwed no matter what.) My grandmother is 87 years old and she has never had a healthy habit in her life – I don’t have a memory in my brain which doesn’t have her lounging on a sofa with either a cup of coffee or a beer or glass of wine in one hand, and a cigarette in the other. (As one of my cousins once asked at a young age, “Does your Grandma ever sleep?” He seriously thought she was a vampire.) Exercise? Oh hell no, it might have mussed her hair or nails! Eating healthy? That was for hippies! She didn’t have any particular aversions to salads, but “cholesterol” was never in her vocabulary. Honestly, despite the fact that she makes me completely batshit crazy, I love my grandmother, but the fact of the matter is – she should have been dead at least 10 years ago. Having escaped all else, Alzheimer’s has come in for it’s final revenge.
The only thing that will keep these potential costs and # of patients down is that the current BB generation is willing to try new things that might kill them before Alzheimer’s hits, such as skydiving and basejumping. (If I live to be 70, I will be taking up basejumping or some similarly suicidal hobby. I am not kidding.) The other thing the BB’s have going for them is that they know this is a definite possibility for their future and they know the more active you keep your brain, the more you can slow down their brains turning to cement. Kids, keep playing Scrabble and Sudoku and doing those NYTimes crossword puzzles – even if you have to occasionally black out empty boxes to make the words fit.
There is a line in the article that really hit me right upside the head: “They estimate that a drug that delays the onset of Alzheimer’s by five years would decrease the total number of Americans age 65 and older with Alzheimer’s from 5.6 million to 4 million in 2020. And if a drug were discovered by 2015 that slowed disease progression, it could cut the number of people in the severe stage of Alzheimer’s disease in half to 1.1 million by 2020, and 1.2 million in 2050, down from the projections of 6.5 million.”
How do I say this nicely? Well, I’m pretty sure I can’t. The rest of the first of the above sentences is “and by putting off Alzheimer’s by five years, we are going to save some serious coin because there’s a damn good chance that something else will kill them first, and much faster than a terminal illness that takes 5-7 years to run it’s course and requires intervention damn near immediately once symptoms present.”
I can see how some may cry “death panels!!!!!!” But it’s not that. Take a minute and think about it. If you could have 2 years with a loved elderly relative who was in the present and loving life and they kicked off while walking out of a salon with a perfectly coiffed ‘do and lovely manicured nails (as my great-grandmother did) vs. having that relative around for another 3 to 5 years beyond that where they essentially ended up no more than a zombie – which would you choose? And if you were said elderly relative? As much as I’d love to see things from the zombie side of it all, I’m not down with it if it entails my family going through hell on earth.
The part of the report that bothered me the most is the fact that unpaid family care amounts to roughly 20 hours a week per Alzheimer’s patient – with no consideration of what people have to give up to provide those 20 hours a week. If you have a 20 hour a week commitment creeping into your life while trying to hold down a 40 hour a week job, well guess what – in this economy, your ass is going to get bounced out of your 40 hour a week job. So not only are you providing a 20 hours a week, $20/hour service for free, you’ve also lost any income to offset it from your 40 hour a week job. Were my mother still alive when things went south with my grandmother, she would have had to quit her job, and tend to my grandmother at no charge. She would have been down $92K a year. Had I still been working, I would have only been down $72K a year, cause my Mom pulled down more a day than I did. The only reason I didn’t have to quit my job when my grandmother went off the rails was that I had already decided to take some time off from Corporate America due to burnout and the fact that I was still trying to cope with the fact that I didn’t have a Mom anymore. And I was in a situation where I found that I couldn’t even reasonably consider even the most intriguing offers of employment – because I couldn’t say, “Well, I’m kind of on call 24/7 for my grandmother, can you handle that?” and expect any level of interest in my copious random skills. So, while the 12.5 billion hours of “free care” for 11 million people a year may be accurate, the full costs of providing those 1136 hours of care per year aren’t taken into account.
The costs of Alzheimer’s will certainly explode, but I don’t think anyone is taking into true account the cost of not just “free” caregiving by family members, but the cost of caregiving plus everything else that has to be given up to provide said caregiving.
That being said, I will still sell everything I have to make sure my grandmother has the care and comfort she needs in whatever time she has left on this mortal plane. I just don’t like the idea of anyone thinking it is “free” in any way, shape or form. It takes it’s toll not just on checkbooks, but on everyone’s mental health and well being that is involved.
And yes, were there a magic drug that could have staved off Alzheimer’s until some other ailment quickly kicked my grandmother onto the next stage of whatever it is that comes after life, so she could enjoy her time left on this earth without being paranoid about her taxes and bills being paid and terrified if there was ever a mistake? I’d be calling her every day at 5PM to make sure she took her pills.